Thursday, June 7, 2012

PDF Learning Institute Invitation

Linda and I are honored that we have been invited by the Parkinson's Disease Foundation (PDF) to attend the Parkinson’s Advocates in Research Learning Institute – Western Region July 19-21 in CA.  We are excited that we will be able to share what we learn through this blog.  We also plan to continue doing advocacy presentations to PD support groups and other community organizations.   Hopefully, we will also have additional opportunities to spread the word through media interviews.  Here is a brief description of what we will be preparing for:

By participating in the Learning Institute, you will be joining a network of more than 156 PDF Research Advocates throughout the United States who are working to improve the process that leads to new Parkinson’s treatments. Research Advocates are asked to commit to volunteering a minimum of five hours per month on activities that can include working with researchers and study coordinators to address gaps in Parkinson’s research, reaching out to the Parkinson’s community about the importance study participation and participating in Parkinson’s Advocates in Research (PAIR) monthly conference calls. We believe the Learning Institute will provide you with the knowledge and skills necessary in helping to move Parkinson’s research forward.

We are more than happy to make this commitment and look forward to publishing a description of the experience when we return.

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